Publications
This is a list of publications within the MeInWe project as of September 2024. The list will be updated regularly.
Published:
Bogicevic, I., Rohrberg Kristoffer S., Høgdall, E., Svendsen, Mette N. 2020. The Somatic Mode: Doing Good in Targeted Cancer Therapy. New Genetic and Society doi.org/10.1080/14636778.2020.1799345
Bogicevic, I. and Svendsen, M.N. Taming Time: Configuring Cancer Patients as Research Subjects. Medical Anthropology Quarterly 35(3): 386-401
Dam, M. S., Green, S., Bogicevic, I., Hillersdal, L., Spanggaard, I., Rohrberg, K. S. & Svendsen, M. N., 2022. Precision patients: Selection practices and moral pathfinding in experimental oncology. Sociology of Health and Illness. 44, 2, p. 345-359
Dam, M. S., Green, S. (2023). Personal organoids: Patient personhood and the ethics of avoidance. Science, Technology & Human Values, published online: https://doi.org/10.1177/0162243922114320.
Gjødsbøl, IM., Winkel, BG., Bundgaard, H. 2019. Personalized medicine and preventive health care: juxtaposing health policy and clinical practice. Critical Public Health https://doi.org/10.1080/09581596.2019.1685077
Gjødsbøl, IM. 2019. Personlig medicin: Forebyggelse i politik og praksis. I: Folkesundhed – bag om intentioner og strategier. Glasdam, S. & Boelsbjerg, HB., eds. København: Gads Forlag. Pp. 115-126.
Gjødsbøl IM, Ringgaard AK, Holm PC, Brunak S, Bundgaard H. The robot butler: How and why should we study predictive algorithms and artificial intelligence (AI) in healthcare? DIGITAL HEALTH. 2024;10. doi:10.1177/20552076241241674
Vogt, H., Green, S. & Brodersen, J. 2018. Precision medicine in the clouds. Nature Biotechnology, 36(8): 678-680.
Vogt, H., Green, S., Ekstrøm, C. & Brodersen, J. 2019. How precision medicine and screening with big data could increase overdiagnosis. BMJ, 366: I5270. doi: https://doi.org/10.1136/bmj.l5270
Green, S., Carusi, A. & Hoeyer, K. 2019. Plastic diagnostics: The remaking of disease and evidence in personalized medicine. Social Science & Medicine. Published online as part of a SI on Regulation in Healthcare. https://doi.org/10.1016/j.socscimed.2019.05.023
Vogt, H., & Green, S. (2020). Personalized medicine: Problems of translation into the human domain. In D. Mahr, & M. von Arx (Eds.), De-Sequencing. Identity work with genes (pp. 19-48). London: Palgrave Macmillan.
Green, Sara, Vogt, H. & Brodersen, John, 2020, De raske patienter i personlig medicin: Sygdomsforebyggelse og overdiagnosticering i Personlig medicin: Filosofiske og tværvidenskabelige perspektiver. Harnow Klausen, S. & Christiansen, K. (eds.). Munksgaard , p. 181-212
https://doi.org/10.1007/s40656-021-00367-w
Green, S. (2021). Cancer beyond genetics: On the practical implications of downward causation. In D. S. Brooks, J. DiFrisco, & W. C. Wimsatt (Eds.), Levels of Organization in the Biological Sciences. MIT Press.
Green, S., & Svendsen, M. N. (2021). Digital Phenotyping and Data Inheritance. Big Data & Society, 8(2), 1-5.
https://doi.org/10.1177/20539517211036799
Green, S, Dam, M.S. & Svendsen, M.N 2021, 'Mouse Avatars of Human Cancers: The Temporality of Translation in Precision Oncology', History and Philosophy of the Life Sciences, vol. 43, no. 27, 27, pp. 1-22. https://doi.org/10.1007/s40656-021-00383-w
Green, S., Dam, M. S., & Svendsen, M. N. (2022). Patient-derived Organoids in Precision Oncology – Towards a Science of and for the Individual? In C. Beneduce, & M. Bertolaso (Eds.), Personalized Medicine in the Making: Philosophical Perspectives from Biology to Healthcare. Springer. (Invited chapter) https://www.springer.com/gp/book/9783030748036
Green, S., Carusi, A. & Hoeyer, K. (2022). Plastic diagnostics: The remaking of disease and evidence in personalized medicine. Social Science & Medicine, 304, 112318. https://doi.org/10.1016/j.socscimed.2019.05.023
Green, S., Prainsack, B. & Sabatello, M. (2023). Precision medicine and the problem of structural injustice. Medicine, Healthcare and Philosophy, published online: https://doi.org/10.1007/s11019-023-10158-8
Green, S., Hillersdal, L., Holt, J., Hoeyer, K., & Wadmann, S. (2023). The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization. Medicine, Health Care and Philosophy, published online: https://doi.org/10.1007/s11019-022-10128-6.
Green, S., Prainsack, B., & Sabatello, M. (2024). The roots of (in) equity in precision medicine: gaps in the discourse. Personalized Medicine, 21(1), 5-9.
Pot, M., Spalletta, O., & Green, S. (2024). Precision medicine in primary care: How GPs envision “old” and “new” forms of personalization. Social Science & Medicine, 358. https://doi.org/10.1016/j.socscimed.2024.117259
Jensen, A.M.B. (2022). Making it Happen: Data Practices and the Power of Diplomacy among Danish Organ Transplant Coordinators. BioSocieties. https://doi.org/10.1057/s41292-021-00267-z
Jensen, A.M.B., & Svendsen, M.N. (2020). Collaborative intimacies: How research pigs in Danish organ transplantation facilitate medical training, moral reflection and social networking. MAT Medicine Anthropology Theory, 7(2), 120-149. https://doi.org/10.17157/mat.7.2.5045
Jensen, A.M.B., & Larsen, JB. (2020). The public debate on organ donation and presumed consent in Denmark: Are the right issues being addressed? Scandinavian Journal of Public Health, 48(5), 480-485. https://doi.org/10.1177/1403494819833797
DOI: 10.1111/1467-9655.13817, Part of ISSN: 1359-0987, Part of ISSN: 1467-9655
Wadmann, S.; Hauge, A. M.; Navne, L. E. (2023). Good conduct in a context of rationing. A case study of how frontline professionals deal with distributive dilemmas of novel gene therapies, Sociology of Health & Illness
DOI: 10.1111/1467-9566.13608
Navne, L.E. (2023). Making sense of new disease categories: Naming, spatializing and serializing in genomic medicine. Medicine Anthropology Theory.
Ó Cathaoir, K.E. 2019. In Search of Solidarity: Personalised Medicine in Denmark. Nordisk socialrättslig tidskrift nr. 21-22: 65-95
Yann Joly, Gratien Dalpé, Charles Dupras, Bénédicte Bévière-Boyer, Aisling de Paor, Edward S. Dove, Palmira Granados Moreno, Calvin W. L. Ho, Chih-Hsing Ho, Katharina Ó Cathaoir, Kazuto Kato, Hannah Kim, Lingqiao Song, Timo Minssen, Pilar Nicolás, Margaret Otlowski, Anya E. R. Prince, Athira P. S. Nair, Ine Van Hoyweghen, Torsten H. Voigt, Chisato Yamasaki & Yvonne Bombard, Establishing the International Genetic Discrimination Observatory, (2020) Nature Genetics 52, 466–468
Ó Cathaoir, K. & Hartlev, M. 2019. Personlig medicin - en udfordring for patienters rettigheder?, Juristen, no. 6, pp. 219-231.
Ó Cathaoir, K. E. & Hartlev, M. 2020. Lovgivning – realiteter og udfordringer. In: Personlig medicin - filosofiske og tværvidenskabelige perspektiver. (eds) Søren Harnow Klausen & Karin Christiansen. Munksgaard
Ó Cathaoir K. 2021 ‘The invisible child of personalized medicine’ Journal of Law and the Biosciences 7;8(2) https://doi.org/10.1093/jlb/lsab029
Pinel C. 2020. Renting Valuable Assets: Knowledge and Value Production in Academic Science. Science, Technology & Human Values. Online first. doi.org/10.1177/0162243920911974.
Pinel C., Prainsack B., McKevitt C. 2020. Caring for data: Value Creation in a data-intensive research laboratory. Social Studies of Science. Vol. 50(2), pp. 175-197. Doi.org/10.1177/0306312720906567.
Pinel C. 2020. When more data means better results: Abundance and scarcity in research collaborations in epigenetics. Social Science Information. Vol. 59(1), pp. 35–58. Doi.org/10.1177/0539018419895456.
Pinel, C. and Svendsen, M. N. (2021) ‘In search of ‘extra data’: Making tissues flow from personal to personalised medicine’, Big Data & Society. doi: 10.1177/20539517211035664
Pinel, C., Green, S. & Svendsen, M. N. (2023). Slowing down decay: Biological clocks in personalized medicine. Frontiers in Sociology, published online: https://doi.org/10.3389/fsoc.2023.1111071
Pinel, C. and Svendsen, M.N. (2023). Domesticating Data: Traveling and Value-Making in the Data Economy. Social Studies of Science https://doi.org/10.1177/03063127231212506
Skovgaard, L. and Svendsen, M., N. 2023. Use of tissue and health data: attachments and detachments among an enabling public. New Genetics and Society. 42, 1, 21 p., 2215912. https://doi.org/10.1080/14636778.2023.2215912
Skovgaard, L. and Grundtvig, A. 2023, Who tweets what about personalised medicine? Promises and concerns from Twitter discussions in Denmark. Digital Health. 9, 12 p. https://journals.sagepub.com/doi/full/10.1177/20552076231169832
Skovgaard, L. and Hoeyer, K. 2022. Data authority: Public debate about personalized medicine in Denmark. Public Understanding of Science. 31, 5, p. 590-607 18 p. https://journals.sagepub.com/doi/full/10.1177/09636625221080535
Svendsen, M.N. 2018. The “Me” in the “We”: Anthropological Engagements with Personalized Medicine. Encounters 10(5):1-26.
Svendsen, M.N. 2019. "Jeg" og "vi": Antropologisk engagement i personlig medicin. Tidsskriftet Antropologi nr. 71: 65-83
Svendsen, M.N. 2021. Pigs, people and politics: the (re)drawing of Denmark’s biological, politico-geographical, and genomic ‘borders’ BioSocieties https://link.springer.com/article/10.1057/s41292-021-00244-6
Svendsen, M.N. 2022. Near Human. Border Zones of Species, Life, and Belonging. Rutgers University Press.
Svendsen, M.N., Dam, M.S., Navne, L.E. and Gjødsbøl, I.M. 2022. Configuring the Human: Moral Experience and Moral Practice in the Life Sciences. In: Handbook of the Anthropology of Technology. (Eds) Douglas-Jones, R., Bruun, M.H. and Kristensen, D.B. Palgrave
Svendsen, M.N. & Navne, L.E. 2022. Citizen-person. The ‘Me’ and the ‘We’ in Danish Precision Medicine. Science, Technology, and Human Values. https://journals.sagepub.com/doi/full/10.1177/01622439221108535
Svendsen, M.N., M.S. Dam, I.M. Gjødsbøl, S. Green, K. O Cathaoir, L. Skovgaard, L.E. Navne, O. Spalletta, J.B.L. Knox, L.G. Jensen, I. Bogicevic. 2024. Lad os værne om de slumrende relationer til gen-data. Kronikken i Politiken 26. august 2024.